My name is Billy Dyle and I live in Picayune, Mississippi. I was diagnosed with ALS in 2005. I have a wife and two beautiful children. I’m 51 years old.
Last week, I was given a tremendous opportunity to participate in a research project that may tell me why I got ALS. It may lead to a treatment. In fact, it may lead to a cure and even a way to prevent the disease. I jumped at the chance, figuratively speaking of course because I’m in a power wheelchair and no longer can jump. But you know what I mean.
As of October 19, 2010 every person living with ALS in the United States can self-enroll in the National ALS Registry!
The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease, how it can be treated and even prevented.
The ALS Association led the fight to establish the National ALS Registry, working with Congress to enact the ALS Registry Act and secure federal funding to design, build and implement the National ALS Registry at the Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry (CDC/ATSDR).
We are now pleased to provide the ALS community with the tools and resources available on this site to help people with ALS enroll in the Registry and to assist the ALS community in sharing news about the Registry.
We encourage you to print and share information about the ALS Registry and urge people with ALS to enroll. With the support of the entire ALS community, the National ALS Registry can lead us to find the cause, treatment and cure for ALS!
Become an Advocate! We need your continued involvement in the advocacy efforts that helped to make the Registry possible. Therefore, we encourage you to become an ALS Advocate TODAY!