The ALS Association Texas Chapter
Can't be in DC? Follow the conference here:
On Twitter: @ALSPublicPolicy #ALSA13
On facebook: facebook.com/
|Live video stream from the conference|
The 2013 Advocacy Day and Public Policy Conference starts May 8, 2013. Once again, this year we are pleased to offer live video coverage of several important conference sessions to those at home. If you are unable to make it to DC, tune into our ALS Association's Facebook page or LiveStream Channel to watch the following sessions:
Wednesday, May 8:
- 3:00 – 4:15 pm Eastern: Welcome Remarks/Government Research Session, including presentations about the National ALS Registry and the Department of Defense’s ALS Research Program.
- 6:30 – 8:00 pm Eastern: ALSA Rally Dinner with keynote speakers and award presentations.
Friday, May 10:
- 9:30 – 11:00 am Eastern: ALSA Research Session will cover The ALS Association’s TREAT ALS program, presented by our Chief Scientist, Dr. Lucie Bruijn.
- 11:15 am – 12:30 pm Eastern: FDA Session will discuss what the FDA’s role in the drug development and approval process.
- 1:15 – 2:30 pm Eastern: ALS Clinical Trials Session includes presentations from companies working to find a treatment for ALS.
- 2:45 – 4:30 pm Eastern: Myths and Facts about ALS will feature Dr. Richard Bedlack from Duke University discussing his ALS Untangled program.
Follow us on Twitter @ALSPublicPolicy to stay informed and learn what you can do to make a difference from home. We encourage you to join the conversation by using our conference hashtag #ALSA13
2012 Advocacy Conference Produces Results!
More than 900 ALS Advocates. Nearly 90 people with ALS. Over 20 military veterans with ALS. One goal: to urge Congress to step up the fight for a treatment and cure. That was the scene at The ALS Association's 2012 National ALS Advocacy Day and Public Policy Conference held in Washington, DC May 13-15. Click here to read the full report.
Purchase photos from the 2011 National Advocacy Day
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Click here to read highlights from the 2010 National ALS Advocacy Day and Public Policy Conference